| Eman: thanks for the blog:) |
| Eman: hi.. am Eman 28, am from Jordan,i have been diagnosed with Lupus since 2001.. and still taking cortezone till now.. i lost my hair cause of Lupus and had my kidney infected.. i have a high blood pressure.. and joint pain.. am glad to have a sightt sharing thoughts in..few ppl know about it in my country .. i need soluotions for my hair loss..waiting ur replyzzz |
| LaShayna W: Hello, i admire you for being able to discuss, this issue do many people are afraid, I am 30 years old and was diagosed with Lupus when i was 14, i have had my ups and downs but through it all i am proud to say that God is keeping me around. I take Plaquenil and Prednisone, and i use diprolene creme and Aquphor for the butterfly rashaes, people don't understand what people with Lupus go through, but i will continue to pray for you, and God is the answer always.. |
Melissa C: Yo Flo! Just wanted to stop by and I must say that I am really enjoying your blog. You continue to be a strong writer (and a strong person too I should add). One thing that annoys me about public transportation are students who keep their backpacks on!!! That irritates the crap out of me! Them and their bag take up half the aisle! (Sorry, just had to get that off my chest). Keep up the good work. You're doing great!!  |
| Kathy Sue: I am inspired by this site. I have been officially diagnosed with Lupus since June 10th 2009 I have felt so alone for so long. Never knowing if it is going to be a good day or not. I am a single mother of three children and I now have a name to go with all the years of problems I have had with my health. I just found a local support group and I am really wanting to get active in my community. I don't want others to feel alone like I do! God bless you and all who live with this everyday! |
Victoria: I believe that all people suffering with lupus should really stick together to be a motivational support system. There are plenty of people who think that they are facing this illness alone because they are unaware of it. I love this blog and it is very motivational to see someone who goes through the same things I do. I was diagnosed last year in april 2008, a month after my 17th birthday and i have been fighting every since  |
| Barry: I love the blog. This what I hope my blog can be like some day. I really loved the TV blurb you put up. I'm a two time kidney transplant patient going on three. Except now I have to wait on the list like so many other people. It's wonderful to find others that live and think like me. |
| Melanie: Thank you for your blog. I am just about to turn 21 and was diagnosed with lupus last year, but I have been sick for quite a while. You are very inspiring and I look forward to your updates! |
| Christine: It cut me off! Anyway, they said that would explain him wearing the glove on one hand, the wigs because it causes baldness, and the makeup and umbrellas because the sun would have made it worse. Apparently, he was suffering pretty bad and wouldn't go public with it. Anyway, I know it is a hard life. My prayers are with you! |
| Christine: Hi! I just wanted to say something to try to cheer you up. I have been researching prednisone. It was given to me for a back condition and I gained about 30 lbs.! I have been trying to find out how to get rid of it. With a back condition, I don't need the extra weight! Anyway, I read your page and my heart went out to you! I do want to tell you that you may be sharing shoes with a famous person! It was reported today, (don't know if it is true) Michael Jackson had a form of skin lupus. Oops! |
| Trish: Your post about the gluten was old, but if you are still wanting to know without a scope done, check out www.enterolab.com. They do a fecal test to see. It's supposed to be 100% accurate. Good luck! |
| Belinda: WOW! I finally found someone who is going through the same thing I am. I am also 27 years old and I have Lupus. About 2 years ago I wazs diagnosed with renal fail and although I was hoping to stay off dialysis I was told yesterrday that my creatnin level is extermely high and I have to go on dialysis. I also have 3 children and I and a fulltime student. I am trying to figure out how I am going to fit all of this in and manke it all work together. you have really inspired me to keep going. Thanks |
| Neha: Anybody who reads this, and have suggestion for me, you are please welcome. |
| Neha: Hi Miz, I fnd you message so emotional as well as inspiring. I m 24 yrs old and diagnosed with 3 yrs ago. I am on medication as leading a smooth life. Though doctor has infomed that I will have to take medicines may be through out my life. which I don't want. |
| Tobi: your blog is so inspiring yet emotional...Stay strong, dear and believe your healing is on the way! |
| Miriam: I added you to the DSEN blog report of 4/30--see the bottom of the post. |
| lwright: You are inspiring me to write a blog. I'm on dialysis after two failed transplant. I'm 29years old and I'm just trying to enjoy life |
| Gerald Hall: Stay strong and keep fighting. I too have Lupus SLE. My business is anatole by ghall, all one word. God bless you. |
| Lewis: i know where the fractures in your foot are, if your still curious send me the images via. e-mail on bigfateyerbows@hotmail.co.uk |
| Amber: Hey, I just started reading this after my friend showed it to me. I don't have Lupus but she does. I know I'll never feel the physical pain that both of you are feeling, but seeing my friend suffering so much scares me to my wits. I'm scared because she's scared, but reading this has helped. It's helped me to understand what she's going through, so for that, I thank you and wish you all the best for the future XxX |
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